Look What NOAH Has in Store for You!





Reservations can be made at:

The negotiated rate is $140/night plus tax single-quad occupancy or $195/night plus tax for a junior suite.
National Organization For Albinism And Hypopigmentation
 NH camp    adult weekend  

Become a NOAH Member!



2nd parent book cover

NOAH’s 10th Annual 
March 20-22, 2015

Check out some great event photos from 2014!

Information about NOAH teleconferences and webinars can be found on our NOAH Parents Page!


NOAH Volunteer Position Open
Fundraising Events Coordinator

If you are an experienced event planner with the drive and desire to volunteer for NOAH, here is a great opportunity just for you.

NOAH is searching for an organized, energetic, passionate, committed person to lead grassroots fundraising events including the NOAH Bowl-a-thon as well as other fundraising events.

Job Responsibilities

  • Recruit NOAH members to host fundraising events
  • Support NOAH members in a variety of fundraising efforts
  • Serve as a contact person for grassroots fundraising events
  • Assist with promotion of NOAH fundraising events
  • Implement a “thank you” program for hosting events

Event planning experience required.

Submit your letter of interest and resume outlining your event planning experience to info@albinism.org by June 6th.

Don't take our word for it! Here's what participants have to say about "Parent Connections" 

"I appreciate the outlet to vent and share my experience of having two children with albinism. I feel very fortunate to be a part of this group. It has been amazing to have guests give insight to the various situations my children are faced with on a daily basis. "

"The calls have been a really supportive experience. It's nice to hear other people’s stories who are going through a similar issue. The guest callers are informative and that gives me a head start on what to expect as my child grows. It's also a great outlet reminding me to nurture and take care of myself so I'm able to truly take care of my son." 

"It’s an opportunity for parents to share thoughts, ask questions, provide resources for each other, and describe the struggles and triumphs experienced by our children and ourselves. Because everyone already understands the condition, a deeper level of conversation can be reached."

About Parent Connections
NOAH, in partnership with Lighthouse Guild International, has developed a parent support teleconference program as another way to bring the albinism community together. 
Parent Connections is an opportunity to talk with others who understand what you are going through as a parent of a child with albinism. Get the support you need to be a healthy, informed parent, and build connections in the albinism community – all in the comfort of your own home. 

The teleconferences consist of a limited number of parents to provide a safe and comfortable environment for you to voice concerns, ask questions, and share your experiences. Two groups meet for one hour twice a month; one in the evenings and the other at midday. Both are facilitated by a licensed professional and feature presentations from professionals on raising children with albinism.

  • Scheduled for one hour, twice a month 
  • Facilitated by a licensed professional 
  • Daytime or evening group available 
  • Presentations from professionals on topics about raising children with albinism 
  • Opportunities to pose questions to the pros 

To join one of our small group communities, please contact Sheila Adamo atsadamo@albinism.org.