Special Events

    Look What NOAH Has in Store for You!


     
     
    NOAH Ed U


     
        
    pittsburgh
     

     
    NH camp
     Coming soon, 
    purchase NOAH's second parent book!2nd parent book cover
     
       

    NOAH Volunteer Position Open
    Fundraising Events Coordinator
     
    adult weekend
     
    parent connections
     



    Conference Registration is Open! 
    Email for a password reset link to register.

    Visit http://noah.kintera.org/conference for the registration brochure and complete online registration process! 

    NOAH San Diego



    Attendees are now able to book their conference lodging by calling reservations at 800-772-8527 and mentioning “NOAH” or by accessing the NOAH reservation website!

    Town and Country Resort Hotel
    500 Hotel Circle North
    San Diego, CA 92108
    619.291.7131
    800.772.8527

    www.towncountry.com
    $129 single/double
    $149 triple
    $169 quad

    Kids 18 & under stay free with an adult registered in the room

    Parking: $4 per day for hotel guests /$16 per day for local guests




    Plan an event this summer!





    NOAH’s 9th Annual 
    Bowl-a-thon

    Check out some great event photos!




    NOAH Volunteer Position Open
    Fundraising Events Coordinator

    If you are an experienced event planner with the drive and desire to volunteer for NOAH, here is a great opportunity just for you.

    NOAH is searching for an organized, energetic, passionate, committed person to lead grassroots fundraising events including the NOAH Bowl-a-thon as well as other fundraising events.

    Job Responsibilities

    • Recruit NOAH members to host fundraising events
    • Support NOAH members in a variety of fundraising efforts
    • Serve as a contact person for grassroots fundraising events
    • Assist with promotion of NOAH fundraising events
    • Implement a “thank you” program for hosting events

    Event planning experience required.

    Submit your letter of interest and resume outlining your event planning experience to info@albinism.org by June 6th.







    Don't take our word for it! Here's what participants have to say about "Parent Connections" 

    "I appreciate the outlet to vent and share my experience of having two children with albinism. I feel very fortunate to be a part of this group. It has been amazing to have guests give insight to the various situations my children are faced with on a daily basis. "

    "The calls have been a really supportive experience. It's nice to hear other people’s stories who are going through a similar issue. The guest callers are informative and that gives me a head start on what to expect as my child grows. It's also a great outlet reminding me to nurture and take care of myself so I'm able to truly take care of my son." 

    "It’s an opportunity for parents to share thoughts, ask questions, provide resources for each other, and describe the struggles and triumphs experienced by our children and ourselves. Because everyone already understands the condition, a deeper level of conversation can be reached."


    About Parent Connections
    NOAH, in partnership with Lighthouse Guild International, has developed a parent support teleconference program as another way to bring the albinism community together. 
    Parent Connections is an opportunity to talk with others who understand what you are going through as a parent of a child with albinism. Get the support you need to be a healthy, informed parent, and build connections in the albinism community – all in the comfort of your own home. 

    The teleconferences consist of a limited number of parents to provide a safe and comfortable environment for you to voice concerns, ask questions, and share your experiences. Two groups meet for one hour twice a month; one in the evenings and the other at midday. Both are facilitated by a licensed professional and feature presentations from professionals on raising children with albinism.

    Details:
    • Scheduled for one hour, twice a month 
    • Facilitated by a licensed professional 
    • Daytime or evening group available 
    • Presentations from professionals on topics about raising children with albinism 
    • Opportunities to pose questions to the pros 

    To join one of our small group communities, please contact Sheila Adamo atsadamo@albinism.org.