Save these Dates for NOAH Fun in 2015!


More fun than going to the gym and healthier than drinking soda, celebrate 2015 by joining your friends
in the albinism community at any of
six events from coast to coast!


San Francisco



nh camp
 adult weekend

NOAH Ed-U Winter 2014

Reservations can be made at:

The negotiated rate is $140/night plus tax single-quad occupancy or $195/night plus tax for a junior suite.

National Organization For Albinism
And Hypopigmentation
  Become a NOAH Member!


2nd parent book cover

NOAH Local/Regional Web Pages:
Check out the great local/regional activities!

Information about NOAH teleconferences and webinars can be found on our NOAH Parents Page!

Don't take our word for it! Here's what participants have to say about "Parent Connections" 

"I appreciate the outlet to vent and share my experience of having two children with albinism. I feel very fortunate to be a part of this group. It has been amazing to have guests give insight to the various situations my children are faced with on a daily basis. "

"The calls have been a really supportive experience. It's nice to hear other people’s stories who are going through a similar issue. The guest callers are informative and that gives me a head start on what to expect as my child grows. It's also a great outlet reminding me to nurture and take care of myself so I'm able to truly take care of my son." 

"It’s an opportunity for parents to share thoughts, ask questions, provide resources for each other, and describe the struggles and triumphs experienced by our children and ourselves. Because everyone already understands the condition, a deeper level of conversation can be reached."

About Parent Connections
NOAH, in partnership with Lighthouse Guild International, has developed a parent support teleconference program as another way to bring the albinism community together. 
Parent Connections is an opportunity to talk with others who understand what you are going through as a parent of a child with albinism. Get the support you need to be a healthy, informed parent, and build connections in the albinism community – all in the comfort of your own home. 

The teleconferences consist of a limited number of parents to provide a safe and comfortable environment for you to voice concerns, ask questions, and share your experiences. Two groups meet for one hour twice a month; one in the evenings and the other at midday. Both are facilitated by a licensed professional and feature presentations from professionals on raising children with albinism.

  • Scheduled for one hour, twice a month 
  • Facilitated by a licensed professional 
  • Daytime or evening group available 
  • Presentations from professionals on topics about raising children with albinism 
  • Opportunities to pose questions to the pros 

To join one of our small group communities, please contact Sheila Adamo